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Mid-August to October is the hardest time for any special needs mom. It’s the time when one starts fighting for the services from the Department of Education that are mandated for your children, but have to be fought for anyway. It’s the time when you feel the indifference of the bureaucracy, yet to you and your family, every decision and every choice means so much to the special soul that you are advocating for.…
Added by Jodi on September 14, 2014 at 12:00pm — No Comments
We have just concluded our 10 week summer vacation to Israel. We also stopped in Cypress, Berlin and a short side trip to Poland so that Meron can try meet his goal of 30 countries before his Barmitzvah next year.
Yesterday we were on a train packed with backpackers. It brought back lots of memories from my free spirited and crazy treks in Europe. The good old days when I thought I was anonymous in society and that my actions had no consequences. I have crazy…
Added by Jodi on September 2, 2014 at 4:15pm — No Comments
Last night I was standing with Gavin watching a concert in Tzefat. We are here for the Klezmer festival one of our favorite summer activities.
We were sitting on a low wall on the side when a group of religious guys came up to Gavin. The one guy started explaining something to Gavin and I could see gesturing and nodding and then they left and Gavin had a smile on his face. I asked Gavin what they wanted. Apparently one of the guys had made a promise that he…
Added by Jodi on August 19, 2014 at 2:30am — No Comments
I have been in Israel for seven weeks now and I have been struggling with a blog post. My struggle has been around the fact that I have so many ideas and so much to say that I could not find just one topic to focus on. I have experienced a country of unprecedented unity, a country at war, country mourning its dead and a people so resilient that life goes on no matter what the challenges.
Today, I read a heartfelt letter from a NY acquaintance that has spent 7 months in Jerusalem. She…Continue
Added by Jodi on August 6, 2014 at 4:30pm — No Comments
It’s been surreal being here through the sirens. After each siren I marvel how people just continue with life. It so Israeli – and I can only imagine the contrast in any US city if there was just one rocket. The city would be in lock down with mass hysteria.
There are many more subtle things that I appreciate too. This issue closest to my heart is how much more integrated special needs people are in society. I only have to reflect on my experiences dealing with summer camp. The answer…Continue
Added by Jodi on July 15, 2014 at 3:05pm — No Comments
Added by Jodi on July 7, 2014 at 4:00pm — No Comments
Added by Jodi on June 21, 2014 at 2:00pm — No Comments
My daughter Temira, age 10, frequently makes comments that are both wise beyond her years and highly amusing. Last week she said "Imma, why do the single girls we know always say they want a cute guy. They should just marry someone like Abba - he is just average - not good looking not bad looking but a great father and good husband." Needless to say this quote, when I posted on Facebook, received a huge amount of viral coverage because her comment is true not just for dating but so many…Continue
Last week, our dear friends suffered a terrible tragedy – they lost their 3 month old son to SIDS. Its every parent’s worst nightmare to wake up and see that there baby is not breathing. The family then suffered a double tragedy when the 49 year old grandmother of the 3 month old, suddenly passed away while the family were sitting shiva. An absolutely devastating story.
A few days later I received hate mail targeted at my organization and me and some of our best volunteers. The person…Continue
Added by Jodi on June 1, 2014 at 8:30am — No Comments
Over Shabbat, we had the son of long-time family friends stay. We had not seen him for 20 years and he had no idea how much parents had impacted my life and the life of my family.
During the first Gulf War, I was in Israel for my year after high-school and when the war broke and the threat of scud missiles raining down on Israel became a real concern, my parents insisted I leave Israel and despite my…Continue
Added by Jodi on May 20, 2014 at 3:00pm — No Comments
I had a busy and interesting weekend. On Saturday I participated in a charity walk around Manhattan. It is a 32 mile (50km) walk on the shorefront. I walked for 12hrs and most of the walk is pretty and gives you an interesting perspective of Manhattan.
While I was tired I managed most of the walk without stress but the last 6 miles are very hard as the exhaustion hits, every muscle hurts and my feet were burning. As it was Shabbat I was not carrying a bag and relying on public…Continue
This week, a close friend who has struggled to become pregnant expressed her dilemma on deciding whether to do genetic testing on the baby she is carrying. She knows us well and Caily too and her concerns were not only about the low risk of miscarriage from an amniocentesis but also what she would do in the event of a positive testing for Down syndrome. Furthermore all the testing in the world does not identify so many issues including the most common developmental disorder…Continue
Added by Jodi on April 25, 2014 at 11:57am — No Comments
When I lived in South Africa I used to take school-aged kids with limited Jewish backgrounds on away Shabbatons. Part of the programing was an activity where Judaism is shown in museum of the future as an old religion that is no longer around. The message was that if we do not care about your heritage then one day our grandchildren will walk through a museum of Judaism as Jewish life will cease to exist. Cute activity but in South Africa 20 years ago there was very little assimilation and…Continue
Added by Jodi on April 8, 2014 at 12:32pm — No Comments
On Shabbat we took a JICNY group to Crown Heights for Shabbat. We were privileged to hear Rabbi Simon Jacobson speak about having a purposeful life and he said that each person should know what their personal mission in life is. He spoke about the crises in our modern world with so many unhappy people and so many people relying on therapy. His suggested the anti-dote is that people should know what their personal mission in the world is -…Continue
Added by Jodi on March 26, 2014 at 7:00pm — No Comments
I attended the “Reel Abilities” Film Festival at the JCC in Manhattan. This festival is unique in that all the movies share a common theme and focus on people with various kinds of disabilities – physical, cognitive or psychiatric; genetic, congenital or acquired.
I love these movies as they give me a different perspective on the world and educates me on those forms of disabilities that I am not as familiar with.
As one on the opening night speakers said of the festival, "It…Continue
Added by Jodi on March 13, 2014 at 8:30am — No Comments
Every night, when we put Caila to sleep, after her bedtime story,the last thing she asks us to do is to go through a list of everyone who loves her. We rattle off the names of family, friends, class mates, teachers and therapists. She beams through the whole process and then turns onto a her side with beautiful look of pure content and off to dream land she goes.
Caila feels so loved and accepted. In spite of her challenges she is exceptionally confident and will always offer to lead…Continue
Added by Jodi on February 25, 2014 at 8:00am — No Comments
Recently I have travelled a lot even by my standards, I was in North Carolina, home 1 week then Miami, home a week and then South Africa for a family visit that included 17 hrs flight each way and 3 nights on the ground. Home a week and for my kids' winter break we are now in Arizona. Gavin and I realize that we have an unusual set up where we both can work from anywhere and we also make use of the miles and hotel points acquired on Gavin's frequent business travel. …Continue
Added by Jodi on February 14, 2014 at 4:04am — No Comments
February marks Disability Awareness Month and each year since I have joined this community I see hints of progress. In fact this link shares that even the fashion industry is rethinking the definition of a perfect body. http://www.upworthy.com/i-bet-these-people-never-expected-to-be-models-but-the-results-are-so-gorgeous-2?g=3&c=reccon1
Added by Jodi on February 5, 2014 at 2:00am — No Comments
What a journey! 3 countries, 9 cities and 27 apartments before making Manhattan home almost 14 years ago!
Our adventures included living in the outback in Australia and the most remote parts of New Zealand. We got married very young and we had aspirations to make aliya and move to Israel. Gavin had a large student loan from medical school and there was arbitrage opportunities working as a doctor in outback areas where they paid a lot and we could take these…
Added by Jodi on January 13, 2014 at 2:48pm — No Comments
I have been reading the book ‘I am Malala’, the story of Malala Yousafzai, the young girl shot in Pakistan by the Taliban for going to school, I heard her speak at the UN at age 16 and heard her TV interviews. Like many around the world, I was captivated by her bravery and passion and so was inspired to read the book.
Malala comes from a poor family in a poor part of the world with extremely repressive conditions especially for woman. Malala did not see herself as the victim but…Continue
Added by Jodi on December 31, 2013 at 9:30am — No Comments